by Mary- Elizabeth McCourt
Epidermolysis Bullosa is an extremely rare genetic skin disease where the skin is as fragile as a butterfly’s wings. It is so rare that there are only 12 people in the tri-state area that have EB. Most children who are diagnosed only live until they are about 16. Life is extremely hard for these children who battle this disease everyday. The skin inside and
outside their body is constantly blistering and cracked, leading to severe pain and disfigured wounds that never heal. But there is good news, the EB Research Partnership is already working on a cure. Scientists worldwide are looking for treatments such as stem cell use to treat children with EB.
On Monday May 23, Long Beach High School will be hosting a student vs teacher basketball game to raise awareness and money for the EB Research Partnership.
The game will be from 3:00-5:00pm in the HS gym. Anyone interested in participating in the basketball game can buy raffle tickets before school in the commons or in the cafeteria for 25 cents to see if their name is drawn on the morning show. There will also be a free-throw and half court shot contest. Students can buy additional raffle tickets to enter a drawing to participate in the contests.
The game will consist of four quarters with four different sets of teams, two male and two female. There will be two teams of male teachers for two quarters and two teams of male students to compete against them. The same will go for the females.
T- shirts with the “Shooting for a Cure” logo and sponsors’ names will also be sold at the game for $10 each. To raise money, a Crowdrise page was also made for individual sponsors. The QR code is below as well as on flyers and posters for the event.
This event is being organized by Emma Biffer, Kate Hanson, Brooke Harrington, and Mary-Elizabeth McCourt under the supervision of Mr. Bruno. All are encouraged to attend.